Well, my blood counts are at the bottom and now we have to get through a few days to see them start to build from the new donor system. I've had a few days of a little nausea just trying to keep pills going down. And then I'd bit the inside of my mouth, got a blood blister which then activated some mouth and throat soreness from the mucasitis (an expected issued for someone in my stage). Then there is the blood sugars...low when I'm not on steroids and then back up when I'm on them (common for anyone on steroids is high blood sugars). And with the sore throat I've been drinking enough water so I've had IV fluids over night. So, all-in-all on a scal of 0-10 with 10 being all kinds of harse response to everything, I'm at about a 1 or 2. I'm doing really well as all this other stuff is really minor.
Well, Margaret is starting radiation in Portland on her spine to deal with some new tumors and then she will fly back to NYC. Her plan is to eventually move to Portland in July 2011.
Kathryn's 11th birthday celebration is this week. She is very excited for her party with friends at Oaks and then for pizza and then an overnighter at her girlfriends. Then she get the big family party on Sunday at Red Robin. Fun, Fun, Fun!
Take care all, thanks for your continued prayers and support.
Keeping my family, friends and colleagues up-to-date on my treatment and progress
Kathryn, Joan & Lauren
"Me and My Girls"
Lotsa Helping Hands - a care calendar of Joan's needs
Use this link to join Joan's community of Helpers!
http://www.lotsahelpinghands.com/c/618444/
Join this community calendar to stay informed of happenings regarding Joan's transplant and three-month home recovery process. You can opt to sign-up to assist with her children's needs (outings, overnighters, activity dates) as well as the family's meal needs, Joan's personal care helper needs and all transportation needs.
Joan will not be allowed to drive for three months following transplant and is fairly home-bound due to her depressed immune system. She is required to stay away from germs and public places. If you have been ill or around people who are/were recently sick, please excuse yourself from any duty to a "need". Thank you.
Only after a donor is located and the tranplant is scheduled will we know her entry date for her four-week transplant hospitalization. Once Joan enters OHSU. we will then have a better gauge of potential timeline all the needs. In the meantime, you can sign up to the community and choose to receive emails when "needs" begin posting.
http://www.lotsahelpinghands.com/c/618444/
Join this community calendar to stay informed of happenings regarding Joan's transplant and three-month home recovery process. You can opt to sign-up to assist with her children's needs (outings, overnighters, activity dates) as well as the family's meal needs, Joan's personal care helper needs and all transportation needs.
Joan will not be allowed to drive for three months following transplant and is fairly home-bound due to her depressed immune system. She is required to stay away from germs and public places. If you have been ill or around people who are/were recently sick, please excuse yourself from any duty to a "need". Thank you.
Only after a donor is located and the tranplant is scheduled will we know her entry date for her four-week transplant hospitalization. Once Joan enters OHSU. we will then have a better gauge of potential timeline all the needs. In the meantime, you can sign up to the community and choose to receive emails when "needs" begin posting.
Candle Business! Buy or book!
Support Joan's flow of income....buy some candles or even host a virtual candle show (on-line party or catalog only show).
To view the current catalog on-line visit her website
www.partylite.biz/joan and click on "shop" tab.
To host a catalog party or a virtual show, send an email to Candle.Lady@comcast.net, please allow up to 48 hours for a response.
If you have not received a response in 72 hours, you may also contact julieclarke@juno.com or afraeyman@earthlink.net who are both supporting Joan by helping assist her customers and hosts as needed.
To view the current catalog on-line visit her website
www.partylite.biz/joan and click on "shop" tab.
To host a catalog party or a virtual show, send an email to Candle.Lady@comcast.net, please allow up to 48 hours for a response.
If you have not received a response in 72 hours, you may also contact julieclarke@juno.com or afraeyman@earthlink.net who are both supporting Joan by helping assist her customers and hosts as needed.
Wish List
- Attend a Candle Party at Joan's!
- Prayers and Healing Thoughts
Links
Books and Resources
- "The Tibetan Book of Living and Dying" by Sogyal Rinpoche
- "You Can Heal Your Life" by Louise Hay
2 comments:
Have you read all the books you had stacked up? Need some suggestions?
Can you receive visitors? Want any?
"God expresses unsurpassable love for us and ascribes unsurpassable worth to us by sacrificing the one who has unsurpassable value on our behalf."
Patience Gifford
Was keeping myself busy with activities but then ran into a period Day 8 plus where my attention and focus was not as strong. So, I rested, listened to FM Classics radio and just medidated to let my body regenerate as needed. I've got plenty of projects and two books but thank you!
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